This web site is aimed at documenting some experiences with Chronic Fatigue. I am not a doctor but feel that doctors my not be approaching the problem from a good perspective. Some facts about me:
1) I had Chronic Fatigue and recovered.
2) My background is in software engineering.
One of the first things one runs into with CFS is that all the tests done by doctors come back negative. So they have nothing to go on, to try and fix and measure that they have fixed it.
To me, all the medical tests they do are a bit like measuring computer CPU %. Its at 50% so you don't think something is wrong, but it does not help you work out what is actually wrong. When a software engineer looks deeper, they see error logs, stack traces. A stack trace shows where one can see software processes failing. The Software engineer might take a small part of the program, and prod it with various test inputs, until they reproduce the problem. The then understand where the process is failing and eventually fix the bug.
We need to research into ways to track processes in the body to understand when the process go wrong rather than just measuring instances in time.
Ideas:
1) Maybe take a blood sample, then take one of the cells in the blood sample and start poking it, try to trigger the various functions of the cell and watch the process to see where it veers off the norm.
2) My school biology told me that there are things in body cells that are involved in energy production and processing. Mitochondria. I think studies of Long Covid and CFS should be looking at the energy processes within Mitochondria and analyze whether they are behaving normally or not.
3) When I had CFS, the main thing that helped me was balancing my glucose levels. I recent youtube video that explains this a bit better is https://www.youtube.com/watch?v=DnEJrgc1BCk
My cure for CFS was based on sorting out my gut, so I was also on the "Candida" diet as it helped balance out the "good" bacteria a bit better in the gut. The "Candida" diet was secondary to the need for balancing of glucose in relation to the CFS symptoms I had.
Until I worked out the link between ingesting high glucose and the resulting lack of energy. Its kind of the opposite from the prior common sense attitude I had that more glucose means more energy.
4) For an explanation on how Mitochondria work and what helps them work better try:
https://www.youtube.com/watch?v=JGO2qb7wZns
Note: I have no link, financial or otherwise with anyone in the videos. They can just explain it a bit better than I can.
1) I had Chronic Fatigue and recovered.
2) My background is in software engineering.
One of the first things one runs into with CFS is that all the tests done by doctors come back negative. So they have nothing to go on, to try and fix and measure that they have fixed it.
To me, all the medical tests they do are a bit like measuring computer CPU %. Its at 50% so you don't think something is wrong, but it does not help you work out what is actually wrong. When a software engineer looks deeper, they see error logs, stack traces. A stack trace shows where one can see software processes failing. The Software engineer might take a small part of the program, and prod it with various test inputs, until they reproduce the problem. The then understand where the process is failing and eventually fix the bug.
We need to research into ways to track processes in the body to understand when the process go wrong rather than just measuring instances in time.
Ideas:
1) Maybe take a blood sample, then take one of the cells in the blood sample and start poking it, try to trigger the various functions of the cell and watch the process to see where it veers off the norm.
2) My school biology told me that there are things in body cells that are involved in energy production and processing. Mitochondria. I think studies of Long Covid and CFS should be looking at the energy processes within Mitochondria and analyze whether they are behaving normally or not.
3) When I had CFS, the main thing that helped me was balancing my glucose levels. I recent youtube video that explains this a bit better is https://www.youtube.com/watch?v=DnEJrgc1BCk
My cure for CFS was based on sorting out my gut, so I was also on the "Candida" diet as it helped balance out the "good" bacteria a bit better in the gut. The "Candida" diet was secondary to the need for balancing of glucose in relation to the CFS symptoms I had.
Until I worked out the link between ingesting high glucose and the resulting lack of energy. Its kind of the opposite from the prior common sense attitude I had that more glucose means more energy.
4) For an explanation on how Mitochondria work and what helps them work better try:
https://www.youtube.com/watch?v=JGO2qb7wZns
Note: I have no link, financial or otherwise with anyone in the videos. They can just explain it a bit better than I can.